"For nine years it was something I
rarely talked about, other than with close friends and family. Then in
June of 1998, I was asked to present my miracle story at the Dana-Farber
Institute with 150 CEO's and Boston doctors, including a Nobel prize
winner in cancer medicine," acknowledges Margie. "That's when I
realized my victorious battle with a disease that threatened my life
wasn't just a chapter to put behind me. It was a story to share."
Then the phone started to ring off the
hook. And so evolved Embracing Challenge, an originally
self-published book to be published next year by Doubleday. Embracing
Challenge documents Levine's extraordinary defeat of
pleuralmesothelioma to become the world's longest survivor of the disease.
When doctors told Levine in 1989 that her
cancer which had ravished her body had no cure, they advised the former
health education teacher and social worker to pass the six months she had
left with loved ones. Levine had other ideas. She wasn't about to accept a
death sentence. She devised a tremendously aggressive treatment for a very
aggressive illness. She convinced doctors at Brigham and Farber to let her
design her own treatment protocol, the first of its kind ever done in
Boston. It included surgeries, 25 sessions of radiation and 4 intensive
chemo sessions. Margie tolerated the harshest drugs that can be given to a
human body.
"They rebuilt my chest wall. I have
one hundred clips around my heart," notes Levine. Margie also
recognized that to heal, sometimes medicine alone is not enough. The
connection between mind, body and spirit was at the heart of healing fully
from this life threatening disease. She defined forty-one steps to healing
including forgiveness, journaling, vegetable preparation rituals,
affirmations and designing custom visualization tapes. Her tools and
methods are the backbone of Embracing Challenge, which is
given to all lung cancer patients at Brigham and Women's Hospital.
Margie's goal is to empower others, and Embracing
Challenge is designed as a self-empowerment guide. Today, she works
with other cancer patients worldwide through speaker phone or in private
homes training others in what she deems the most important part of
healing: visualization and guided imagery. Margie also presents workshops
on integrative medicine using her forty-one techniques in local Boston
hospitals.
"I train individuals to communicate
with their individual cells and direct them what to do," notes
Levine. "I guide them to develop imagery that evokes the personal
healing power of the individual person." She also runs the Boston
chapter of the Institute for Noetic Sciences, an international resource
and educational organization exploring higher consciousness and mind-body
health started by Apollo astronaut Edgar Mitchell.
Cancer was a turning point and revealed a
mission for Margie. "I feel like I've been kept alive for a
reason," she reflects. "I used to rush through my meals helter
skelter. Talk about human doings versus human beings! Now I slow
down." Her healing crisis connected her to a divine source, leaving
her with a more potent connection to the divine. "I suffered for 20
years with a back problem that required me to become a good coper. I
became very strong learning we have more abilities to cope when put to the
test than we realize." In this sense, Margie's fight with cancer drew
upon the strength she had developed through the years of living with her
back pain.
"I believe we are on the verge of
finding a healing system that exists within us. If we learn to tap it
through visualization and meditation then we can enhance our immune system
and be on the path towards healing. I am grateful for every day and I want
to give back. I've devoted my life to help other cancer patients harness
their own coping skills to cope. If I die tomorrow, I know I've made a
difference in the world."
The Healing Way: A Journal for Cancer
Survivors
Margie Davis, now 50, is someone who
when confronted with life's challenges does not remain idle or detached.
She takes action. For the past seven years she has been teaching personal
essay writing and helping people look reflectively at the events in their
lives. Nine years ago Margie's father died of brain cancer.
"That was my first close up experience
of someone with cancer. Over the past two years a close friend has been
struggling with cancer and cancer treatment. Being an Aries, I could not
just sit by and watch. I had to do something. When I saw what my friend
was going through, including the side effects she had from chemo and
radiation, I realized she could get a lot by writing about the experience.
Then I thought more globally. Everyone with cancer could be writing about
their experience and reaping the benefits from their writing."
Davis knew from her experience that
expressive writing helps people heal emotionally. "That's all I knew
at first. So, I did research. I got in touch with a clinical specialist at
the Melrose-Wakefield Hospital, Maureen Kelley. At that time she had over
fourteen years of clinical experience working with people with cancer. She
educated me about the psychosocial issues that people with cancer face. I
wrote a first draft of The Healing Way with topics
and prompting questions to aid the cancer survivor in their healing
process and went around to different people for feedback. I got help on
the first draft from my friend, who was in fact writing, partly at my
suggestion."
As Margie researched this kind of
expressive writing, she learned about research done in the 1980's by John
Pennebaker, a psychologist. His clinical research showed that writing deep
thoughts and feelings could help people heal not only emotionally, but
physically as well. "This type of writing produces lymphocytes, a
type of white blood cell that boosts the immune system. That is part of
the physical part of the healing." Pennebaker and colleagues repeated
the study many times. Half the test subjects wrote their deep thoughts and
feelings after traumatic events. The other half wrote about superficial
topics and they all agreed to be tested physically. Their blood was tested
for lymphocytes before they started writing, right after they finished
writing, and then six weeks after they finished writing.
"The researchers also did skin
conductivity tests right after writing and found that the skin was drier.
When your hands are clammy you are anxious, not calm. They measured the
heart rate and pulse right after writing and showed that both had
decreased. All these findings showed that the subjects were more relaxed,
suggesting that the act of writing releases thoughts and feelings and
calms people down. None of these changes occurred in the control group who
wrote about superficial topics."
Margie sent Dr. Pennebaker a draft of her
book. His wife also looked at it. She was a breast cancer survivor, so
both Pennebakers became supporters of the book. In fact, James Pennebaker
wrote back, "The research evidence is clear: writing about emotional
upheaval improves physical and mental health. You have put together an
important cancer journal that can guide people through their own emotional
and psychological journey after a cancer diagnosis. Its strategy is to
encourage individuals to look at their lives as they progress from
learning about their cancer, through treatment and beyond. As a researcher
and a spouse of a cancer survivor, I strongly support your book."
Margie's vision for the book is to help
people heal. "From the book sprang the idea to offer expressive
writing courses. I lead "Writing About Cancer" courses on-line
at my web site www.writingtoheal.com,
and in person at Dana-Farber, the Wellness Community, and other hospitals
and support groups.
"People who sign up on-line are in all
stages of cancer: in treatment, in remission, or living with cancer. For
people in remission, some have been in remission for many years." Two
of Margie's recent students were long time survivors, seven and nine years
respectively. "While their bodies had healed, their emotional health
still wasn't up to par," reflects Davis. "They still carried
with them the emotional scars of that time, being treated for cancer. They
felt a need to write their stories to explore the remnants of their
experience with cancer. The Healing Way serves this
function too — helping both patients and survivors put their cancer
experience into perspective."
The book is organized into two parts. The
first part has writing topics with prompting questions to write about
within categories. The back part of the book is called the "personal
resource section." This section is for keeping notes, so the book can
be an intimate companion for patients while they are being treated. It
includes a place to ask questions of doctors. When people are having
chemotherapy they often have brainfog and can't think quickly on the spot.
Here they can prepare the questions in advance and there is room to write
down the answers. There are also pages to write down test results so they
can keep track of their own progress. There is room as well to write down
names and phone numbers of the dozens of people that come into your life
when you have cancer, and a section to put down important dates like
treatment schedules. I recommend that cancer patients write down their
treatment dates in pencil, since they are always subject to change based
on blood counts."
Margie donates a portion of her proceeds
from the sale of each book to cancer patient support organizations.
"This is another way to support cancer patients," she
acknowledges.
____________________
Linda Marks, MSM, has practiced
heart-centered, psychospiritual body-centered psychotherapy for sixteen
years. She is founder of the Institute for Emotional-Kinesthetic
Psychotherapy in Newton, and author of LIVING WITH VISION: RECLAIMING
THE POWER OF THE HEART (Knowledge Systems, 1988). She has taught
and spoken nationally and internationally, and has been a leader in the
emerging field of somatic psychology. She lives in Newton, MA with
her four year old son, Alexander. Linda's new book EMBODYING THE
SOUL: DANCING INTO LIFE is due for release in the spring of 2001.
You can contact her at (617)965-7846 or LSMHEART@aol.com
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